Dear Family and Friends,
I
have not updated the blog for quite some time. Miriam has had very
minimal progress but she has had close calls during her suprapubic
catheter placement. As a result, I have pulled Miriam's foley catheter
and she seems to be tolerating it without any skin breaks for the past 3
months.
What
is most pressing at the moment is to pray for her upcoming Baclofen
Pump and Intrathecal catheter removal this coming August 13, 2013. The
catheter tip was positioned too high by the neurosurgeon in Atlanta.
This made it very difficult to titrate her intrathecal dose. I consulted
with her neurologist and agreed to lower her dose to the lowest
possible dose. If she tolerates this lowest possible dose then Baclofen
pump and intrathecal catheter removal will follow. Miriam has tolerated
this lowest dose.
Interestingly,
I received an FDA warning that the Baclofen Pump has a recall. So, this
Baclofen Pump and Catheter removal is really divinely ordained.
Miriam has had very little progress. We continue to wait for His healing.
In His Time,
Dad/Alex
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